Bee's Hive

Wednesday, February 25, 2015

A Day at the Cancer Center

Yesterday I was scheduled to have the Pet Scan I missed while in the hospital all of January. They didn't make me fast for 3 days...just for 6 hours. It went much better although being in the MRI machine for over 2 hours was a bit nerve racking.

Good thing is the cancer is not in any other organs!  The bad thing is they are afraid radiation will make the Rheumatoid Arthritis cause the cancer to grow instead of shrink. They will instead start Chemo in 2 weeks and see how the tumor reacts. They are considering surgery if the chemo does it's job.

 The delay is because while in the hospital I picked up cellulitis.  For the past 6 weeks my feet and legs have swollen and turned red. I've been calling them my elephant legs. About 10 doctors and numerous nurses have removed my compression stockings, pressed on my feet and legs, put the socks back on and said I had very swollen legs...none did anything.  Yesterday morning I couldn't wear shoes or even slippers. It was very painful to walk on my feet and my knees were so swollen I couldn't get them over the tub edge to shower. It was time to make demands about the condition.

After all the tests had been done at the hospital, I had an appointment to see the oncologist. I removed my stockings and told him we could go no further until he took care of the legs. He looked at them with a purple light and decided I had cellulitis. I am now on an antibiotic but if it doesn't work fast enough he'll put me in the hospital for IV treatment.

Every person and every tumor reacts differently. The doctors have a general idea how it will go but they also expect things to fall apart when the patient has other medical problems. The way they are acting I think the RA has given unexpected problems in the past...we'll see how it goes. They did say the drugs they will be using will cause my hair to fall out....I'm prepared. I bought fun wigs, hats and even henna tattoo's. I just can't see myself wearing a chemo "rag" down to my eyebrows. I'd rather shock them all with a 70 yr. old lady and a fire truck red head of hair and big earrings!  I also bought some skull caps but they need some fancy shiny pins or dangle beading.  

So this is my journey. When I have anything new to tell I'll post or you can ask me to post if I'm missed..smiling at that.  Most people are following my journey on Facebook so sometimes I do forget to post here. Lets all pray for spring! I could use some flowers right now.

Monday, February 16, 2015

Making the best of it......

because I'm alive and that's what counts!  Since spending 3 weeks in the hospitals I've improved a little. Sorting out the right medicines helped and just gaining back some strength.

I managed to make Dave a nice dinner and cake on Feb. 11th for his birthday without passing out so that's good. Today I went shopping. Thanks to all the stores for having scooters I am still able to do my own shopping again.

I am working on a wool cabin quilt for Dave. He has one he loves so I decided it is already 10 years old and has been pretty much abused and washed often so I want to make one and put it in one of those bags you suck the air out of so he will always have a quilt from Mom that he loves. Today we stopped at Goodwill because I am a row short. These quilts are made out of 100% wool skirts and ladies slacks. For some reason Dave gets a real kick out of having all these skirts covering him.

I was able to get 4 nice pieces. One still has the price tag on it. It makes me wonder why someone would buy expensive slacks and never wear them.

Tomorrow I am headed to Philadelphia to meet with the oncologist at the Cancer Hospital. This will help me to decide what to do. I still don't have the facts. This doctor holds the key to where we stand.

Some of you have sent me mail and links to watch. I haven't gotten to them yet. For whatever reason I just can't get my mind to stand still long enough to read. I'm hoping after seeing this doctor I can settle down some.

Thanks Rita for asking me to post or I might have left it go again. Give me a few days to talk this visit over with Dave and then I'll try to post again and let you know where I stand with it.

Monday, January 26, 2015

Little up date

Just got out of the hospital again tonight. Did not have heart failure. Instead I have a clot in my lung from ??? not sure what they said but it doesn't really matter. Now I have an uneven heart beat that has to be controlled with medicine and a blood thinner.

I think I'm pretty lucky every time I wake up and find I'm still here. Staying out of the hospital is the goal for now. Sitting and stitching should keep me down and out of trouble... Now for some rest in my own bed!

Sunday, January 18, 2015

from bad to bad

Just a note. I'm pretty sick so you might not hear from me. Some how I ended up with a blood infection and something caused heart failure.

Tuesday, January 6, 2015

Oh joy, a diet

Today I start the Pet Scan diet. I guess it wouldn't be so bad if I was a meat and fish eater, but I'm not so this is really a limited diet.

Since eggs are the biggest thing on the list of eatables I see a lot of Omelette's being eaten over the next few days.  Salad greens are allowed but I just can't see myself eating a wedge of lettuce with nothing on it so I've removed greens from the short list. I can have chicken or beef stock, tea & coffee with non dairy creamer.

It all looks good, nice and fresh and ready for the steamer but I'm just not sure how to make a meal out of it.

Tomorrow I have to be in Philly to meet with the Oncologist. Of course it's going to snow to make the trip hard and the appt. isn't until 3:00 so the roads will be bad coming home.   This could be a motel night.  

Friday, January 2, 2015


So much to do and now bad weather will start tomorrow night. Next week starts my 3 day fast for the Pet Scan. Not looking forward to it but this should be the last test. It will take place on Friday but on Tuesday I have to be in Philly to meet the Oncologist.

I had to go on Prednisone for the RA...not a good drug but it got me out of bed and my fingers open again. It has the RA joint spasms under control...for now. It's not a drug you can stay on but I needed to be up and running and have a clear head to make good choices right now.

I'm trying to stay busy. I am working on a wool quilt for Dave and maybe I'll have enough wool to make one for my youngest son's truck. I am also trying to work on my quilt, doll quilts I have promised, a covered bridge wall hanging and several other unfinished projects.

I also pulled some dead flowers out of Wal Marts trash. Water and food and I think they are going to give me wonderful flowers sometime in cold old January!

I hope everyone had a great New Years Eve! We spent ours fixing trains and sewing!

Tuesday, December 23, 2014

A short note on the good and Peace on Earth to All

This evening the lung doctor from Fox Chase Cancer Center called to tell me he found no cancer in the brain MRI and the lung cancer is non-small cell (not aggressive). Now onto the Pet Scan in the New Year and check to see if any cancer is in other places. If not then the big decisions will be made; treat or not.

This afternoon my youngest son who drives a truck got a load to Harrisburg, Pa. so he is spending the night with us....All good Stuff!

To each and everyone of you;  Peace on Earth